Suspected PSC

“We suspect that you have Primary Sclerosing Cholangitis, but the MRI isn’t conclusive so we need to do a few more tests to be sure.”

Primary scl-what-now?

I still don’t know how to pronounce the above, and so PSC will do for now. All you lovely people need to know, is that it is a disease that effects the bile ducts in the liver.

There is of course a chance that it may not even be this, but because I have (or technically had as I now have no large intestine) Ulcerative Colitis, this is the most likely outcome as they can be linked.

Roughly 1 in 13 people with UC can develop PSC, why? To be honest, even with some research I am not sure.

How does it effect me?

The only reason the doctors found anything wrong with me was because of some routine blood tests, I have no symptoms apart from being extremely tired for no reason, which to be fair, I just thought was my IBD saying hello.

As the doctors couldn’t be sure from the MRI alone, it means that if it is PSC, it’s not very advanced, which is a good thing.

In the future it can cause problems as the amount of inflammation can cause scaring of the liver. However, I’m not worrying about that until I know for sure if it is PSC.

Sorry for the brief post, just wanted to give you all an update, no doubt I’ll have something to say about the tests that I’m having (liver biopsy and an endoscopy, through the mouth this time, thankfully!)

Till then my friends…

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