Noun, The quality of being thankful; readiness to show appreciation for and to return kindness
I started my blog a few months after my first operation. It was a coping mechanism, how else was I to sort through all the emotions that were flooding through me.
I rambled through my experiences, trying to make sense of what was happening to me. Some posts were full of pure raw emotion about the injustice of my situation but most were just an insight into how a 22 year girl tries to survive with having an ileostomy.
Slowly, people were saying how much they enjoyed my posts and, surprisingly, how well I wrote. I never started the blog for page views; it was purely to help me through some very dark days.
Recently I decided that the blog needed to be taken to the next level. I want to raise awareness for IBD. I want people who have no idea what Inflammatory Bowel Disease to understand what the condition is. I want to answer people’s questions about my journey and about the disease. I want my blog to be full of information for the person who is suffering with IBD, for the person who has no clue and for the person whose friend/loved one is suffering.
In short, I just want to help people.
A good friend of mine built the site. You should check out his business, the link can be found at the bottom right of this page! He took the time out of his busy schedule, whilst he was also organising to get married; he took the time create this.
I love this site and am so grateful to him and his wife for creating this.
I recently found an amazing person called Frank Garufi Jr whose 8 year old son has IBD. Frank is doing amazing work to raise awareness for this disease and you should most definitely check out his page! https://plus.google.com/+TheCrohnsColitisEffect
He sent out a tweet because he wanted people to share their stories. I don’t know how I found it, but I did and I said I wanted to share my story.
I am so glad I found him because we did an interview recently about my story which aired live on YouTube and now is there for all to see, so if you missed it, here is the link. http://www.youtube.com/watch?v=0PJK_D2GA5Y
I asked people on my twitter and facebook to share the link, the comments and responses I received were amazing.
I cried because it does not escape me how amazing my friends and family are. People I hadn’t spoken to in ages congratulated me on my interview. Friends who have IBD told me how they could really relate to what I was saying.
People I didn’t even know where commenting, telling me how amazing it is that I am brave enough to share my story and create awareness.
I don’t see myself as brave. Yes, it is hard for me to talk about soiling myself because I couldn’t reach a bathroom in time but if I don’t tell you how horrible this disease is how will you ever know what people go through?
I’m the voice for hundreds who are too embarrassed to share their story. Embarrassed because society has made them feel this way. Poo is taboo.
I am able to speak to freely about my disease because of the people who are in the background who support me.
We rarely talk about the “background people” and I will do a post on this soon, but I want to highlight that I would not have been able to do the interview if it was not for the background people.
Your support makes me feel strong. Your kind loving words give me courage to speak about this disease, to push through horrible memories and experiences.
Words cannot describe how lucky I am, so let me just say that I am truly grateful for the amazing people I have in my life, and I thank each and every one of you that have supported me on my journey so far.