[email protected] Shane Cutts

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Liver Update

Just a quick update, my liver levels have been consistently normal for the past 3 months. This, my friends is exciting news and I’ll be off steroids within the next month. I’m also hoping that because my liver’s had a break from being inflamed and aggravated, that it will be able to fix some of...
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A brief chat about that dark and twisty place

Picking up my phone to check the time – 7am – I resign myself to the fact as I’ve been up three times since 5am, I probably am not going to get any more sleep. A deep sigh fills my lungs and roll myself out of bed. What to do? Stretching, I decide that instead...
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Roid Rage

Steroids. Tiny white pills sent from the devil. Necessary for my recovery – in fact life saving – but extremely debilitating. When I had what I thought was to be my last dose of steroids back in July 2010 I could not have been happier. I’d been on steroids on and off for my Ulcerative...
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Obligatory End Of Year Post

As I sit to type this, I have about 5 unfinished blog posts in draft for this blog and 3 for Oh No Not Another Blogger. Why? Because my head is a crazy mess and I can’t sit still to sort it out for more than 10 minutes. The level of restlessness I have been...
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I’m sorry, I don’t have any glitter

When I wrote my previous blog I was really inspired to write again. I had high aspirations for myself; had made lists. I had loads of ideas on what to write and with the time off I currently have, I was ready to throw myself in and get cracking. Except the last few weeks have...
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Choose Wisely

When I was diagnosed in July with AIH, my gastro told me that I had to take steroids and I flat out said no. I know what they do to me, I don’t like it, there has to be another way. Bless him, he was like okay cool, so you don’t respond well to Prednisolone,...
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Runaway Organs

At the end of a pretty awful bender at uni, I once said to my best friend over a cuppa and some bacon “I think my liver has packed his bags and is leaving… I physically can’t drink anymore” Oh how we chuckled. Fast forward a few years and my liver is still trying to...
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I swear it’s Deja Vu

4.25am Sunday 27th September St Thomas’ Hopsital. Beginning of day four in the hospital. I’ve only had a few hours sleep during my hospital stay. If it isn’t hospital patients screaming (and I mean full on screaming) in the middle of the night for nurses not to touch them, it’s me being sick till all...
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Blow by blow

Inhale. Exhale. Extend your right arm over your head and breathe, really breathe into that stretch. Remember this practice isn’t about perfecting the poses; it’s about relaxing and feeling what’s good for you. If you want to sway a little, that’s okay. If you want to circle your wrist, that’s okay too. Just breathe, and...
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Still searching

I arrived back home to London at the end of November and after some routine blood tests had found that my liver was out of whack. Cue a lot of hospital visits and a heap of frustration because its been 5 months and the doctors still haven’t figured out what’s going on with my health!...
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Suspected PSC

“We suspect that you have Primary Sclerosing Cholangitis, but the MRI isn’t conclusive so we need to do a few more tests to be sure.” Primary scl-what-now? I still don’t know how to pronounce the above, and so PSC will do for now. All you lovely people need to know, is that it is a...
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New Resolve

Oh Melbourne. How you haunt me so. My southern hemisphere friends are posting pictures of beaches and bikinis. Glorious warm summer nights filled with food, wine and laughter. I scroll through these pictures and am filled with an immense feeling of longing and loss, so strong that I frequently dream of Melbourne. I dream of...
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Patsy

Nothing like a bit of death to evaluate your life, your goals, dreams and ambitions. Saturday 1st November was the first anniversary of my Nan’s passing. I worked during the day and then in the evening I took myself to a really nice restaurant, sat down with a glass of wine, ordered a steak and...
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Growing Pains

“One way or return?” Only then did the tears begin to fall, in front of the bewildered gentleman at the sky bus kiosk. “One way” I finally managed to say. It wasn’t saying my goodbyes to people that started the tears, extremely hard as that had been, it was realising that I was getting a...
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Ibd and alcohol

Oh dear. I’ve become one of the bloggers who’s health becomes better and disappear off the face of the Earth. I am still here! I disappeared partly because as a traveller, trying to get internet, or at the least internet long enough to post, can be very tricky. And partly because, well, I’ve been very...
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Lets push things forward

It’s all kicking off in my life at the moment, and for once, in such an amazingly beautiful way, it takes my breathe away. You can’t appreciate all the amazing things that happen to you if you haven’t had some struggle on the way. And as a lot of you know it’s all been a...
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Wandering traveller

Oh my word. Where to start! What to say?! These past few weeks have been insane. So I hopped from Hervey Bay to Gold Coast to Melbourne to end up in Sydney. I am having such a blast, meeting people and just seeing new things. Question is how am I doing it whilst having IBD?...
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Meet Gabi – Part II

The second part to the guest post that the awesome Gabi Cox has written for me. You can find the first part here...
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Meet Gabi

This wonderful lady got in contact with me one day through this site after reading my guest post for Me and IBD. I can’t tell you why, because I don’t know, but I instantly felt a connection with her. And not in a, oh we have the same kind of story, kind of connection, but...
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The real world

I could be wrong, but I would believe that normal people after a three week stint in the hospital, complete with major operation, would go home and put their feet up. Maybe have a cuppa, watch a bit of TV. I went down the road to the supermarket. I wasn’t alone, I’m silly but I’m...
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A guest post with the amazing Thaila Skye

After my first guest post for Me and IBD, Thaila added me on twitter. My word, I’m so glad she did. This lady is such an inspiration, her Vlogs are fantastic, creative and informative. She’s a great advocate for IBD and raising awareness. Thanks Thaila for agreeing to do this interview. I’m going to stop...
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You have to listen

Recently I spoke about how well I’m doing within my running but with the good, evidently comes the bad and I want to tell you about that too. I was aiming for my longest run. So far the furthest I have gone is 4.51 miles, which is about 7k and my aim was to go...
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Keep on going

Motivation. Noun The reason or reasons one has for acting or behaving in a particular way. The general desire or willingness of someone to do something. What to do when this magical word evades you? I wish I had the answer. I’ve been a bit poorly recently, migraines, tummy pains and this weird thing where...
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Back on the bandwagon

I just can’t seem to stay away from the running! I’ve been running for about three weeks now, I’m heading into my fourth. Though I am super proud of myself and what my body is achieving at the moment, I won’t lie to you guys. I still really hate running!...
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Worst Night Ever.

When I came out of the anaesthetic, I remember trying to hard to stay awake, to fight the sleepiness thinking that if I did, maybe I could go and see my mum and she could make sense of what was happening here. Once I had been wheeled in, I tried so hard to show her...
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Get In Touch

Why hello beautiful people! I just wanted to put up a quick post to say hi. Since being asked to write something for Me and IBD, which you can find here, I have had an amazing response from you guys! Quite a lot of you have been emailing me and getting in touch via Twitter...
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Just blowing steam

I was doing my research rounds the other day, where I check out other blogs related to IBD, check out articles, that sort of thing and I came across a line that upset me a little bit. The article was talking about research into the genetics of IBD and early detection, and in the piece it explained...
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A letter from my small intestine.

Dear Steph, We haven’t exactly seen eye to eye recently have we? I’m hoping that this letter will explain some of my behaviour and then maybe we could get along a little better. I really don’t appreciate the way that you talk about me. You’re so negative! Always on about how you’re fighting me and...
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Toilet related trauma

My previous post, Think before you speak seems to have gone done quite well so I’ve decided I would share some of my pet peeves that come with having IBD. I have heaps, so I will have to break them down into categories and today I bring you “Toilet related trauma” No toilet roll. This...
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This is MY disease

Good morning people! How is everyone doing? I am absolutely grand, albeit I have had a really rough few weeks. It’s been tough, and I’ve considered coming back home so many times BUT I am still in Australia. I haven’t boarded that plane yet! This post, I want to talk to you about some comments...
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Lets Celebrate

Shucks. I missed international nurses day. I wanted to write a post for the day, which is the 12th of May, but alas. I forgot. Ah well. Better late than never I suppose. To be honest, the care that I have received at Guys and St Thomas’ is freakin’ awesome and the nurses that I...
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Happy Third Anniversary

When we were last on my magical carpet ride, I had left the story when I had been admitted to hospital. It only seems fitting that on my third anniversary of my first surgery (and my 100 post!!) that we hop back on again and I tell you about the two weeks I spent in hospital, and...
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Once upon a time I…

In a previous post I spoke about The Fear of being stuck in public and desperately needing the toilet. I very briefly touched on the times that my worst fear did indeed come true and I didn’t make it to the toilet in time. When I wrote this blog, I promised to write about everything, the good, the...
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My first guest post!

I am so chuffed its unreal. Why? Because this amazing site http://www.meandibd.org/ asked me to write a guest post for them on their blog. You can read it here: http://meandibd.blogspot.co.uk/2013/05/guest-writer-steph.html Me and Ibd is such an awesome site for young people. I know that when I was diagnosed there was such a lack of information and support...
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Think before you speak

WHOOOOOOP ITS IBD AWARENESS MONTH! PARTY! Though in fairness, if you have IBD, partying is most probably not on the top of your list and the only partying going on will be a party in your pants. And it won’t be the good kind. ANYWAY. God, can you feel the excitement? so many capital letters! Since being diagnosed...
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The Fear

Having IBD comes with many feelings and experiences. Most very unwanted, but they get chucked at us just the same. The other day I was walking home from a nice relaxing walk with my friend at the beach, I was about 15 minutes away when my tummy started rumbling like a car starting its engine,...
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Here’s to health

I’ve been in Australia for seven months now, I know I can’t quite believe it either! Its so strange to think that moving to a different country can improve your health. I haven’t been this healthy in a long time! Its a massive relief to be able to incorporate more foods into your diet. I...
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Journey of food

I remember talking to be gastroenterologist when I was first diagnosed and asking him whether diet played an important part in my IBD. He said that when I was well I shouldn’t have a problem eating everything but when I was flaring to keep an eye out on what affected me and to stay clear...
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Epiphanies on the toilet

Yes, you read that correctly. I spend a lot of time in the toilet and as most of you know, the toilet is where I do the majority of my thinking. However this was a different kind of epiphany. This time I was cleaning said toilet and I won’t lie, I was not happy. Sometimes...
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Trip down memory lane

Its time to jump on my flying memory carpet. Lets fly through 2012, 2011 and arrive in April 2010. I had been keeping my IBD under control with Azathioprine but I was still having trouble, things were far from perfect and my gastroenterologist wanted to up my medication to the next level and to be...
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Am I fighting a loosing battle?

I will never forget the moment when I decided to travel to Australia. My house mate and I were sitting outside of her room, on the floor of the landing. As a house hold, we all took to sitting in inappropriate places, the kitchen, the hallway, stairs, we’ve even had conversations whilst we were washing...
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FOMO

In my previous post I spoke about how I had a car crash and I didn’t want to tell anyone because I was embarrassed. Note that the moment I got my car I took a picture and posted it to Instagram and Facebook. It got me thinking about social networking and what we choose to...
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Oh boy

What’s crackalackin’ peeps? Till about ten minutes ago I was sitting on my sofa reading a very lovely book called “The Happiness Project” by Gretchen Rubin Its about a lady who takes a year out to find out what makes her happy. She dedicates a month to a specific theme and explores it. I’m really...
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Diet issues

Living in London Town, there were all kinds of foods that I couldn’t eat without having painful tummy rumbles. I can’t list them because there are so many but just to get an idea, most fruit and veg was out, caffeine, anything sweet and wheat. At one point I’m sure I was living off rice,...
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Life Update

It’s been a while hasn’t it folks! I’m sorry for my lack of posting, I’ve been a tad busy. That and I had a bit of writers block. Sure, I had ideas about posts but when it came to writing them, I’d look at the screen in fear, go to type and just draw blank....
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How can you help Crohn’s and Colitis UK?

Crohn’s and Colitis UK press office asked me to promote their current survey. I of course have done the survey, because as I said in my previous post, knowledge is power and if we don’t speak up about it, how will understand this disease? Please have a look below and take part. For their latest...
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Why do I blog?

It’s a good question. Why do I share my most intimate and private details on the internet for all to see? I was mulling it over, on the sacred throne, and I was trying to figure out why I write. Initially I did it because I found the process quite cathartic. If you look back...
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Managing Stress

How many times has your Doctor/Surgeon/Gastroenterologist said to you, “Try not to get too stressed”, Followed by a patronising pat.
Er, Doctor, have you ever encountered this thing called life?
Generally, life can be pretty stressful....
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Never Give Up

I finally have access to the internet! Happy new year guys! Its always fitting that the first post of the new year is about reflection and thoughts on moving forward....
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Is it too much?

Do I share too much of myself on this blog? This thought has been plaguing me recently, as I do share a lot of intimate, personal details on here. Not only do I share tips and advice on how I cope with IBD, but I also have insights into what I am up to such...
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